Has common sense been
lost forever from the world healthcare? I ask this question because of a recent
call I received about a patient of mine who had arrived in the ER hypotensive,
hypoxic and fast approaching death. The ER doctor called me suspecting she had
an intestinal obstruction. Then he told me her name: Linda X.
The name immediately
resonated with me because I knew her well, having operated on her twice in the
last year. I had first seen her when she was admitted with abdominal pain about
a year before. She had a history of moderately severe COPD and was
intermittently on home oxygen. Workup at that time revealed a mass in the head
of the pancreas. She was not jaundiced nor obstructed at that time. CT Scan
suggested her tumor was resectable, therefore her underlying medical condition
was optimized and then she underwent surgery. At operation she was found to
have adenocarcinoma of the pancreas with involvement of the superior mesenteric
artery and vein, making the tumor unresectable. After surgery she was referred
to the Medical Oncologist who gave her chemotherapy for 6 courses and then
referred back to me to be reexplored. Although my past experience suggested
that her tumor still would not be resectable, a second look represented her
only chance for cure. She opted to proceed with surgery. The findings at the
second operation were almost identical to the first. The tumor had not
increased significantly in size, but also had not shrunk, a finding which was
not very surprising.
It was Linda who was in
the ER now, about 8 months after her second exploration. In addition to the
suspected intestinal obstruction she also was found to have a pulmonary
embolus, pneumonia, acute renal failure and was profoundly acidotic. The ER
physician asked me when I would be taking her to surgery. My polite answer was “never;”
I thought I heard a gasp on the other end of the phone.
“But, she’s obstructed
and may have dead bowel, and she’s not a DNR,” he stated.
“She has unresectable
pancreatic cancer which has not responded to any other treatment. What am I going
to do? Keep her alive to suffer for an extra few days. I think you should just
keep her comfortable and let her go peacefully,” was my reply.
He hung up, but did
follow my advice, which was a bit of a surprise, someone actually thinking
about the patient’s best interests.
I was involved with a
similar patient many years ago, when I was Chief Resident in surgery. Allen came
to our clinic with a carcinoma of the rectum. The diagnosis had been confirmed
by colonoscopy and biopsy. He was having intermittent rectal bleeding and
tenesmus. He did have moderately severe COPD, but his symptoms warranted
surgery. He was further evaluated with a CT Scan of his abdomen and pelvis
which revealed liver metastases. Still, surgery for palliation was indicated; besides,
abdominoperineal resection was a good case for a Chief Resident. This was in
the days before rectal cancers were treated with preoperative chemo/XRT. Allen
was scheduled for surgery, but a few days before he was to undergo the
procedure he was admitted to my service with shortness of breath. His chest
X-ray revealed probable lymphangitic spread of his cancer, something that had
not been apparent a few days earlier on his CT scan.
I sat and talked with
him after the all the workup had been completed. I explained that he had a very
aggressive cancer and that, even with chemotherapy, surgery and radiation, he
had a very limited life expectancy. I asked him what treatment he wanted, explaining
all the options from aggressive chemo to hospice. He asked for time to consider
the options and, before he could make a decision, he suffered a cardiopulmonary
arrest. At that moment, I had just finished a surgery and was in the PACU when
I heard the all too familiar “Code Blue” for room 623, Allen’s room. I raced up
the stairs and found the medical team doing a full resuscitation, about to
intubate him. I pulled the senior medical resident aside and politely asked him
to stop, explaining Allen’s condition.
“But there’s no DNR on
the chart,” he protested.
“I know, but with his
cancer his chance for long term survival is just about zero and all you will do
is make him suffer,” I answered.
He finally agreed and
Al was allowed to pass away. (sounds better than “die”).
Such scenarios occur on
a regular basis. We physicians expend a great deal of time, effort and money
caring for patients with hopeless conditions. I am frequently called to see
elderly, bedridden patients with advanced Alzheimer’s for debridement of
necrotic sacral or hip or ischial wounds. Often they have been ignored by their
families until they have become too ill to stay in the Nursing Home and are
sent to the hospital. Out of guilt or misplaced sense of duty, family members often
want “everything done” even if it means making Grandma suffer and while doing
nothing to improve quality of life. In such cases I will usually explain that
the chances of the wounds healing are poor, but it usually falls to deaf ears.
Most often, if the family insists, I go ahead with the procedure as it is low
risk and does provide some small benefit.
Statistics show that a
large portion of the health care dollar is spent on patients in the last six
months or year of their life. In my book about surgery, “Behind the Mask”, I state that the problem with this statement is
that physicians very often do not know which octogenarian with a perforated
colon is going to walk out of the hospital completely recovered or succumb to
overwhelming sepsis. However, in cases like Linda’s or Allen’s, the treating
physicians should know that their prognosis is hopeless and that they should be
kept comfortable and allowed to die with dignity.
Where does all this
lead? The practice of medicine demands that physicians make medical decisions and
judgments on a regular basis. It is our duty to explain options, risks and
benefits to our patients and their families. Very often such discussions involve
treatment options for life threatening illness and it is best that doctor,
patient and family reach a decision together and that such decision be clearly
documented. Ultimately it is the competent patient’s choice, not the doctor’s
or patient’s family.
But, in a situation
where the patient is unable to make the decision and an immediate decision is
needed sometimes a doctor must exercise common sense and do what is right. This
does not mean care should be withdrawn; rather it means that extraordinary
measures which will only prolong suffering should not be instituted. Does this
mean the doctor is playing “god?” I don’t think so. We physicians spend four
years in medical school and even more years afterwards in residency. We should
understand the disease processes we treat and should be properly equipped to
exercise judgment in cases like the ones cited above. A little bit of common
sense in such situations serves our patients and their families well.